I Better Get Used to It - Uncover Ostomy
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I Better Get Used to It

I have just gotten back to NYC after an amazing spring break in Toronto. I saw many of my closest friends, hung out with my fam, and had an amazing time with my boyfriend. I even have some exciting  news from this week, but I’ll save that for a little later. The point is- this week was amazing.

So of course something has to happen, right?

Today I paid a visit to the dr. who performed the surgery on me a few weeks ago that I blogged about. I had been seeing him every week or so just to keep an eye on my healing. Everything had been going according to plan and I felt like my issue was finally gone. I was relieved.

Today I paid, which what was supposed to have been, my last visit. He surveyed the area that he had operated on and realized that something was not quite right. I had suspected as much, to be honest, but had hoped I was just being a hypochondriac.

Turns out that I was right and he has to get his scalpel back in there.

Wonderful.

Crohn’s disease really does like to mess up your immune system. Something that could have healed quite simply just.. didn’t.

Thankfully, the process I had endured during and after the surgery was actually not as bad as I had anticipated; however unpleasant it still was. The fact that it was not as bad as I had envisioned has actually made anticipating the surgery again again a little less stressful. I am not looking forward to what is to come, but at least I know what I have to prepare for. I’ve realized that knowing is half the battle.

I’m not writing this blog to ask you all for your best wishes because I don’t think I’ll need them. That isn’t to say I don’t appreciate them, (because of course I do!), but more that I really don’t think it will be a big deal. As I said, it’s not pleasant, but it is definitely something I can handle. I know what is to come, how it will feel, and what I will experience.

I guess you can say that you actually can get used to it.

Hopefully.

Jessica Grossman
info@uncoverostomy.org
4 Comments
  • Nessa
    Posted at 23:13h, 20 March Reply

    I know what you mean. My surgeon left in my rectum in case I wanted a J-pouch, but I’ve decided to keep my ostomy. Well, my colitis is every bit as bad in my rectum as it was before surgery and I’m actually LOOKING FORWARD to the next surgery. I want that miserable little thing gone. Of course, I’m on chemo, so I have to wait, wait, wait….

    I hope the next surgery heals better.

  • Chloe
    Posted at 16:23h, 21 March Reply

    yea i know what you mean. the first time i had my ostomy surgery, the surgeon gave me and ileostomy instead of the colostomy i wa supposed to have!

    not the same thing though, is it?

    sigh.

  • Andrew
    Posted at 05:22h, 24 March Reply

    I share your frustration. I’m three weeks out from my proctocolectomy and the incision still hasn’t completely healed. I just found this week that it has to be reopened to properly heal. I’m really not looking forward to missing more work and carrying around my little doughnut pillow again.

  • ronna
    Posted at 07:30h, 27 March Reply

    I know the frustration, Been thru years of cathing due to neurogenic bladder, then supra pubic catheter now a urostomy. I just want to be dry,,, 6 mts in and I,m getting better but I try med tape, duct tape, everything but caulking and because I,m fairly active I leak at the worst times,,, And now I,m voiding bot from the Ostomy and eurethra! It,s a full tome job tending to both. the only thing Golden about the Golden years is my urine!!!!

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