02 Sep Be an Ostomy Ambassador
One of the best traditions that we have at ostomy camp is our final campfire. It’s a time for everyone to talk about the experience they had that week at camp, send love to someone who couldn’t make it that year, or tell everyone there how much they mean to them.
In front of the campfire this year, someone came up and said a little speech. This person talked about how camp was where we all felt comfortable, happy, and secure with who we are. Camp was where it didn’t matter what we had, because at there, everyone was accepted.
Camp, they said, was the way the rest of the world should be and that we had the power to make it so.
I completely agree.
We do have the power to make the world as amazing as ostomy camp.
As individuals, we can make the world as accepting and comfortable with differences by talking about them and being comfortable with them ourselves. We can teach those who don’t know and we can show that there is never anything to be ashamed about.
I don’t think I talk about this enough, but this campaign was created to do just that. It was made to teach those who didn’t know about ostomies what they are and that we, as ostomates, or we, as people who know about ostomies, completely accept them.
It is our duty, as individuals, to make the world like camp.
Tell people about your ostomy or, if you don’t have one, tell people that you know about them or know someone who has one. Explain what it is, show them the Facebook group, and show them the website.
Then, tell me about it!
I’ve decided that I want to name these, what I’m calling, “Ostomy Ambassadors”.
As I see them, I will blog about them and say what they have done to help spread the word. So far I already have 3 I want to write about because they have come to me and told me what they had done. They also told me how great they felt by doing it.
So to all of my followers- Invite people to the Facebook page, show off the website, tell everyone you know about what “ostomy” means, and tell me about it! Write it on the Facebook wall, or post it here, or send me a message- anything.
Do whatever you can to be an Ostomy Ambassador
Thanks guys :]
Janet
Posted at 02:13h, 02 Septemberlol I have a great ostomy story and it includes how it brought me and the guy I'm dating closer together.
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thailainthesky
Posted at 16:37h, 02 SeptemberI've been telling all my friends and family about my ostomy… I think a lot of my friends had no idea what an ostomy was. I love telling them about it, and all of them are fascinated by it and always want to know more. My friend is a student nurse and, after my experience, she's decided she wants to specialise in being a stoma nurse/colo-rectal nurse. I have an ostomy blog, and I've joined forums that talk about ostomies (like the UOAA). Ooh, and I wrote a huge Facebook note about my experience to try and share it with people.
I think sometimes that's all I talk about! *blushes*
jackie
Posted at 04:26h, 07 SeptemberHow R u all so strong. I am on my third ostomy and dont want to leave my bed…. Please help!
thailainthesky
Posted at 09:41h, 07 SeptemberJackie – when I first got my ostomy, I found the UOAA Discussion Forums SO helpful and supportive. At first, I couldn't imagine my life being the same again, and I couldn't picture ever leaving the house. But through the support of the members here, as well as my friends and family, my confidence grew. It might help to have a look at the forum?
http://www.ostomy.org/forum/index.php
Emma. x
Ashley
Posted at 09:14h, 09 SeptemberHey Jackie,
Let me tell you something, well first of all let me introduce myself lol. My names Ashley, I'm 22 and I had an emergency colectomy done on July 25 of this year and was in your shoes. For weeks I was felt ugly, like a freak, and very much suicidal. Like literaly, my family had to watch me day and night because i just couldn't get over my body image. I couldn't walk out my front door and other then having this bag on me I had drains and tubes coming out of my abdomen from the infectoins. I don't even want to get into how i thought my boyfriend thought of me. I would look in the mirror and just cry….The thing that got me out of it was just support from my family and friends. Get up!! You need to fight it and don't let it run YOUR life. You dictate it!. Put on your old clothes that you thought you could never wear again because no one can see it, no one knows about it unless you choose to tell them and you know what? It won't matter to them, especially if it's people who love you. The first thing people see when they look at you is your face, they hear your voice, not the bag. Anyway I know it's hard…It's still a struggle for me but remember your beautiful and own it.
Ashley
Posted at 09:22h, 09 SeptemberOh and don't be afraid to tell people. This all just happened to me less then 6 weeks ago. The first time I saw my best friend after the surgery i looked at her and was like " just so you know, I've got to show you and get it out of the way" I lifted up my shirt and had her meet Pudge. She just laughed and said she would have never known if i hadn't told her. I know it sounds weird but it helped,,,like a lot. Don't be afraid of something thats apart of you.
Tom Graser
Posted at 19:54h, 12 SeptemberMy colostomy came to me as part of my treatment for colon cancer. Shortly after coming home from the hospital I took a business trip. My story is on my blog. http://catnap40.blogspot.com/2006/10/colostomy-catastrophy.html '
Four years have passed since this event and many things have changed. I have never had a similar incidence. In fact, my colostomy is akin to my glasses – It's there but I don't think about it unless I am dealing with it directly.
Tom