05 Oct There’s Always Someone…
So last night I had a conversation with a girl I went to ostomy camp with. We went to a place called Horizon in Calgary. It was a great week long experience to meet other ostomates and to learn from them. I have some great memories from there…But anyways, this girl… I don’t want to name names, to be fair to her, but I’ll explain how she always came off to me…
She was a quiet girl. Seemed like one of the ones who was forced to come to camp out of her own will but stayed quiet about not wanting to be there to avoid drawing attention to herself. She rarely participated and didn’t really talk when the rest of us shared our stories. I never really talked to her because I thought she would have preferred to be left alone. Maybe I should have.
Well last night, and after World Ostomy Day ended, her facebook statuses read:
“yay finally that embarrassment of a day is over.”
“Hate’s how people would be celeabrating such a pointless day there are much better things to celeabrate than this seriously do you think you’ll make an improvment … NO you wont”
Of course I had to comment on the one about making an improvement, just like other fellow campers had commented, and I said, “it’s working so far.”
After I did this, she started to message me on Facebook. She told me that she was embarrassed by the way I was promoting the ostomy and she was ashamed to have one because of it. She didn’t understand how talking about myself and my ostomy was supposed to help. I kindly explained to her that our campaign is not about the ostomy but about a normal girl who happens to have an ostomy. She said she didn’t the point of the whole thing. I told her it was to show other ostomates that it was ok to be proud of what they had and to teach others what an ostomy is. She replied saying we weren’t giving enough information about the ostomy and I told her it takes time and that you couldn’t force all this information on someone who had no idea what an ostomy was and to expect them to understand or listen. I told her by getting people to ask questions about it, they would learn. I said a person is more inclined to listen to an answer if they asked a question for it in the first place.
Even after I explained all this to her, she still didn’t approve.
No matter what the topic, there’s always someone who doesn’t like the message. Just like yesterday someone commented on the facebook page saying she didn’t think I actually had an ostomy. Someone’s always going to have something to say. I know that. But that’s not what bothered me so much.
The thing that did bother me was that this was a girl I went to ostomy camp with. She was part of my support system. There are tons of other campers who have already joined in and promoted the campaign themselves. She was part of their support system too. I just made me think. Maybe she missed something during that week of camp. Why isn’t she happy that the message is out? In whatever shape or form its being told, shouldn’t she be happy the campaign is helping others like her and teaching those who had no idea what an ostomy is?
Like I said, I expected people to be upset, I just never expected a fellow Horizon camper to be the one…
How do you feel about the campaign?