Life is Short - Uncover Ostomy
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25 Oct Life is Short

Posted at 02:56h in Uncategorised by

I only have one midterm this semester and for some reason it has been enough of a stress on me that I have kept myself in the dining room of the sorority house, studying from the morning till late at night. I have showered, but my hair is a mess and I’m wearing sweatpants. I’ve only hung out with my sorority friends while we’ve studied together but have not been able to leave my house to hang out with my other friends.

It’s just one midterm that I’ve had 3 days to study for.

It’s also for a course on Television.

This should not be happening.

I think this whole goal to get into grad school in the United States has really hit home. I mean, I always worked hard in school but something is different. Maybe there’s more drive, more determination. Or maybe I realize that these next few months could determine my future.

Eek.

I remember a time when I wasn’t sure if I was even going to have a future. I was so sick and so isolated that I thought I would never get to live a normal life. Life to me, back then, was doctors and nurses, tests and strange diets, pain and sadness.

Maybe that’s another reason I’m taking this so seriously. I really never know if or… when, I’ll be in that state again. Yes I’ve been healthy for almost 8 years now [knock on wood] but as we’ve noticed with my luck that could easily turn around. Who knows how long an ostomy is good for… though I haven’t found the expiration date yet.. luckily…

I guess I just want to take advantage of everything life has to offer before I can’t anymore. I want to achieve the most I can and be the best I can be before I potentially cannot do that anymore.

Life is short right?

Ok, back to studying haha.

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Jessica Grossman
info@uncoverostomy.org
5 Comments
  • Ed McComas
    Posted at 10:46h, 25 October

    Exactly right Jess. I was sick for 4 years and 10 months, and a couple of times I really thought the end was here. Now that I am well, I live every day like it may be my last. I take the opportunity to tell the people in my life that they matter to me, and I find a new and unexpected joy in the simple things in life.

    The end will come for all of us one day. I, for one, plan to look back and say "I'm glad I did…." instead of "I wish I had…."

  • Ryan Cunningham
    Posted at 08:02h, 26 October

    Hi, My name is Ryan and I know the disease in every which way. Maybe one day I will open up a little more about my life and tell just how closely I know Crohn's. I have been close to death, know all the meds, and been in very strong remissions. I have done even things that most doctors would not agree with. There are only two choices with Crohn's. One is meds and fighting with the damage. This sometimes is an acceptable option but, the clock is always ticking. The other is to get it out of you and meds, good meds. Remicade, Humira, 6-MP, Cipro, Metronidazole and, the Predisone. When I first got Crohn's Predisone, IV Cipro and Metronidazole put me in a close to two decade remission. That was all they had then. Unfortunatly, I got fistulas and they never really healed. Remicade at one time almost but, it wasn't going to fully close. It is just not going to. After 18 years and 12 operations in the past 3 years alone, it has been decided that they can not be healed and the only option now is diversion. Ileo cecal resection plus proctocolectomy. Last, ileo to colon anastimosis; Colostomy. The only way you can tell how strong your remission is is to analize yourself from the inside out with the most detail. Remember you have an inside view.

  • Ryan
    Posted at 08:18h, 26 October

    Hi, My name is Ryan and I know the disease in every which way. Maybe one day I will open up a little more about my life and tell just how closely I know Crohn's. I have been close to death, know all the meds, and been in very strong remissions. I have done even things that most doctors would not agree with. There are only two choices with Crohn's. One is meds and fighting with the damage. This sometimes is an acceptable option but, the clock is always ticking. The other is to get it out of you and meds, good meds. Remicade, Humira, 6-MP, Cipro, Metronidazole and, the Predisone. When I first got Crohn's Predisone, IV Cipro and Metronidazole put me in a close to two decade remission. That was all they had then. Unfortunatly, I got fistulas and they never really healed. Remicade at one time almost but, it wasn't going to fully close. It is just not going to. After 18 years and 12 operations in the past 3 years alone, it has been decided that they can not be healed and the only option now is diversion. Ileo cecal resection plus proctocolectomy. Last, ileo to colon anastimosis; Colostomy. The only way you can tell how strong your remission is is to analize yourself from the inside out with the most detail. Remember you have an inside view.

  • Patty
    Posted at 04:16h, 27 October

    Jessica,

    I want to say thank you for your courage. I am going in on Friday for a colostomy. I was feeling scared and discouraged about it late last week and my husband found your website and showed it to me. The timing couldn't be more perfect. Seeing what you have gone through and all the thoughts you had about your procedure were exactly what I had been feeling. You gave me inspiration and encouragement to face and accept what needs to be done for me to live a better life. I have two young daughters and they have seen more than they should at their age. I just want to say thank you for putting yourself out there and encouraging others that it's not the end of the world. Keep up the hard work in college, it will pay off for you!

    Patty

  • lucy
    Posted at 08:22h, 08 November

    Exactly right Jess. I was sick for 4 years and 10 months, and a couple of times I really thought the end was here. Now that I am well, I live every day like it may be my last. I take the opportunity to tell the people in my life that they matter to me, and I find a new and unexpected joy in the simple things in life.Good work! Your post is an excellent example of why I keep comming back to read your excellent quality content

    that is forever updated. Thank you!
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