10 Things I Couldn’t Live Without

So remember when I said I was going to try to challenge myself at this whole WEGO Health Activist Writer’s Month Challenge thing? And remember when I said I was really going to try to keep up with it? Well, besides the fact that I realized you would all be very annoyed with a blog everyday (let’s face it, you like to see them here and there, not all the time), but my life, over the past week has been thrown for a little bit of a loop.

I am not going to get into any details except to say that I am living out of a suitcase in NYC for the next 3 weeks before I move back to Toronto. I’m basically counting down the days until I move back for a number of reasons that I will share in a more exciting post.

In the meantime, this post is actually to get myself back into this WEGO HAWMC challenge. Yes, I’ve clearly already failed at it-horribly-but I’d like to at least give it another go. It’s only been 13 days into the month, after all..

Well, really, the reason I wanted to post another one of these blogs is because today’s topic is actually currently relevant to my life. As I said, I’m living out of a suitcase and have realized how necessary certain items can be. Well, today’s topic is about the 10 things you couldn’t live without, and within the past week, I have become extremely aware of what those things are. So, to take another stab at this blogging challenge, here are the 10 things I couldn’t live without:

  1. Ostomy Supplies. Duh. But like-really. If I didn’t have ostomy supplies with me, I basically would not be able to function/leave the house. My fellow ostomates out there know EXACTLY what I mean.
  2. Cell Phone. I know this is a very #firstworldproblems kind of necessity, but honestly, I couldn’t live without it. Between connecting with my groups for school projects, to emails about work, to simply feeling safe on a walk home late at night in NYC- I need my cell phone. Of course, I also need it to talk to the people I care about most, and without my cellphone, it would be quite difficult to do so. [Pay phones, you say? If you can find me one within 2 miles of where I am right now, I will give up my cell phone for a week.]
  3. Clean Water. Is this too obvious? Or not obvious enough? Again, another #firstworldproblem thing… But seriously, I am blessed to live in a part of the world where clean water can be accessed everywhere, yet it is still a necessity to me. Not only is water essential to life, it is even more essential to those without colons who can’t absorb it from food. Water=life.
  4. Cereal. Of course, if you need water, you need some sort of food. If I had to live off one food forever, it would definitely be a cereal; a good cereal too, like Kashi cereal or something with protein. Not only is it easy to digest, but it can fill you up. Pair a bowl of dry Kashi Go LEAN cereal with a nice tall glass of water and I have everything I need to stay alive. I could do it.
  5. A Sweater. For some reason, I am perpetually cold. Maybe it’s the ice that runs through my veins, or maybe it’s the fact that I don’t have enough internal organs to keep me insulated. No matter what, I am always cold at one point of the day. A sweater is a necessity.
  6. Shoes. Well, if we’re getting technical,  you always need a pair of shoes.
  7. Sunlight. Sun makes me unbelievably happy. Put me in that ray of vitamin D at least once a week and I’m good to go. I never appreciated how much I needed the sun until that one summer where I worked at Hollister in the mornings and a restaurant, that was dimly lit without windows, at night. Sun is essential.
  8. My Brain. This too may seem a little strange, but to me, it makes perfect sense. If I did not have the capacity to make decisions, make conversation, take in knowledge, or teach knowledge, there would be no reason for me to be alive.
  9. Passport. Just in case.
  10. And last but not least: The Ones I Love. In my short 22 years of life, I have experienced enough hardship and tragedy to realize that the only things that really matter are thepeople who you care about and who care about you. I could do without the sweater because I would have someone to hold me. I could do without the sunlight because I could have someone to make me smile. I could do without the passport because there would be no need leave the person I care about. Loved ones are the most important part of life, and I couldn’t live without them.
The next little while will be difficult here in NYC, but not impossible. I have cereal, I have water, I have ostomy supplies, I have a sweater and my  cell phone- I have the things I need to function. At the moment, I am not in the ideal situation, and I am definitely not happy about it. However, what is keeping me going through all of this is knowing that, once this ordeal is over, I will get to be with the people who love me and whom I love back.
In the meantime, at least I have a pair of shoes.
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What are the 10 things you couldn’t live without?

Time Capsule

I tweeted a little while ago that I had been invited to participate in WEGO Health’s Health Activist Writer’s Month’s Challenge. I was a little shocked that I had been found, let alone invited to participate, especially since as I actually made my profile for the challenge, they didn’t have an option for “ostomy” in their drop down selection of  topic for my blog. Nevertheless, I thought I should sign up and see what this thing is all about.

From what I’ve gathered, the challenge is to write a blog based on a specific topic they give you, everyday. Will I be able to write a blog post everyday? Considering that it’s crunch time for my last full semester to get my M.A at NYU, probably not. Will I try? Hell, yeah. Nothing like a challenge to pump the adrenaline.

So over the next month, I’ll be trying to keep up with their blog topics. I will be challenged to actually write about what theyve asked me to write about, as opposed to writing about my life- which is just sooo much easier.

I hope you’ll enjoy it.

Here is the blog topic I was given for today:

Every life has a story. But often the most well-preserved stories are those accompanied by physical objects and visuals. In this year’s kick-off to HAWMC, create a time capsule of your stories, your life. Will your time capsule be a physical box or a collection of writing or visuals compiled in a digital format? Where would you hide your time capsule? What is inside your capsule (memorable objects, photos, advice), and what stories do the contents tell? Who do you hope will one day find your stories and what do you image they will think? Will your stories ever be on display or will they have a different purpose?

I’ve never made a time capsule before (or I have and have forgotten about it…) so this was an interesting thought for me to think. What matters most to me? What are the most influential moments of my life?

At first, I assumed that this question was asking me about my life in terms of my disease and what I would put away to remember that time. I immediately thought that my box would actually be made out of an empty TPN IV bag, as it was the symbol of my entire time struggling with Crohn’s disease in and out of the hospital. I had been in and out for 2 years, with most of those years being hooked up to an IV pole of TPN because I wasn’t allowed to eat. At one point, I even had this pole at home and had to hook and unhook myself from it (with the help of my parents) every night. I then thought I would include things like a Push Pop, one of the lollipops that were kept in a plastic tube that you had to push up. They were delicious, especially as they were one of the few things I could “eat” while I was sick. I thought I would also include a mini ostomy bag, of course, signifying surgery. I also thought I would include a picture of 6A, the floor at Sick Kids hospital that I resided in. And lastly, I thought I would include one of the hospital bracelets I have somewhere saved in my room, which I supposed I have saved for this reason.

After thinking about my time capsule and beginning to write it out, I realized that this blog topic wasn’t asking about the story of my illness, but it was asking about the story of my life. As most of you know from this blog, my sickness, nor my ostomy, are in any way my life, but are simply small elements of it.

I realized there is so much more I would put in my time capsule. In fact, I would even change the physical element of my time capsule. I quickly changed my mind from the IV bag to a small metal safe- both for resistance to the elements, and so that I could lock it  (logical, right?). I thought I’d bury it in the backyard of my childhood home so that I could find it sometime when I’m old. It wouldn’t be on display- it would just be for me. I’ve got my blog as my display.

As for contents, I knew I would put all of those things I had mentioned above, signifying my struggle with Crohn’s. However small part of my life it was, it was extremely influential to the person I am today. And yet, there is so much more that makes me who I am; so many people, places, and experiences.

Thinking back to these memories, I began to envision what I would include. I started thinking about including a pair of dancing shoes, from all the years of dance I enjoyed. I thought I’d also include a yearbook from my grade 8 class, as it was the last piece of my elementary school education and it took up 12 years of my life. I thought I’d include a pictures from all of the school plays I participated in, in high school, as well as cd’s with recordings of the songs I had sung in vocal class and choir. Obviously I knew that I had to include pictures of my friends and I from high school as well, especially since they some of the most important people in my life, who I fact, still keep in close contact with.

University is the most recent but most memorable time of my life, so I knew there was much to include from then. I thought I’d include pictures from my experience in university residence, my apron from working at the campus restaurant, and an essay I had written for one of my last classes. I’d include pictures of my friends and having ridiculous amounts of fun for no apparent reason either at the bar, or at a friends pool. Unfortunately, I don’t have any pictures from our study sessions. which were when we really bonded, but I may have some study notes I’d include in there as well as a reminder.

My sorority was also a big part of my life, so I knew I’d have to include my bid card (invitation to join), as well as the composite picture where I am president. I would also include pictures of some of the greatest memories of my time there, such as pictures of parties, sisterhood events, and philanthropic events like the bone marrow drive we ran in memory of my dad.

I would of course, include things I had from my dad, such as his cologne that I keep on my dresser at home to remind me of him. I would also put one of the favorite pictures I have of him and I, where he’s holding me at less than 1 years old. I would also include a couple of random toys that my brother and I used to play with as children such as lego and playmobile. And I would include the hotel room key from the time my Mom and I went to Vegas, back in 2010. I would include the birthday card that my boyfriend gave me and a picture from one of our happiest moments. I would also  include a couple of old pieces of jewelry  from my deceased grandmother, and recent pictures of me and my living grandparents.

I would include maps and ticket stubs from my backpacking trip to Europe. I also thought I would my student card from NYU and an I <3 NY tshirt to signify my time living in the city…

..Maybe even my beloved stuffed animal Mr. Wrinkles who I’ve had since I was 1…

As I went on and on thinking about all the things I would put in my time capsule, I realized that there are so many memories from so many people in so many places that I want to remember. I don’t think there is any way I could actually put enough away to remember it all.

One thing I have learned in my short, 22 years of life is that the moment is really all you have. While memories are great things to think about, that’s all you can do with them. What matters is enjoying the moments with the people you love before they become memories, because once you have the memories, the only place they can go is in a time capsule.

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What would you put in your time capsule?