Back From the Conference!

I’m finally, semi, settled back into life since being back from the UOAA ostomy conference in Reno.

It was a great 5 days full of amazing people, seminars, fun events, and food (so much good food!) Positive ostomy energy was everywhere!

While I was there, I helped run a few seminars for the young adults, I stood with Rob Hill at the IDEAS booth in the exhibit hall alongside the product vendors, and I gave the closing ceremony speech at the end of the week on “defeating the stigma.”

It was a fun week but it was definitely overwhelming. I hadn’t expected so many people to know who I was, let alone ask for pictures with me and autographs! Why would anyone want my autograph? I kept telling these people I was just another girl with a bag! I guess it didn’t really help that my picture was EVERYWHERE! There was a poster of my Phoenix magazine cover, I was in the conference program, and I was on a 6 foot tall poster for Colo-Majic’s exhibit booth… so weird.

The good thing about it, though, was that because everyone knew who I was and kept coming up to me, I got to meet everyone! I met such amazing and inspiring people that I would never have met if I had not been invited to this great week. Thanks for bringing me, UOAA!

UOAA Video

See You in Reno!

My favourite thing about doing this whole campaign are the amazing the opportunities I’m given to share my story. By sharing my story, I invite people into my life so they too can see the ostomy from my positive point of view. Too often I’ve met individuals who hate themselves and their ostomies simply because of their poor attitude towards it. My favourite thing in the world is changing these attitudes.

On Thursday I was invited as a guest speaker to the teen ostomy group at Sick Kids hospital in Toronto, the same group I had been a member of many years ago. It was a great opportunity to share my story to young girls and their parents about how I made it through teenagehood with my ostomy. I had a great time, not only because I already knew half the teens there from ostomy camp, but because there was such a positive energy flowing through the room that I couldn’t help but feel proud of all of them. I didn’t really need to be there; they already shared my attitude.

My next speaking engagement (or few engagements) is in Reno this week. I will be flying out tomorrow to attend the United Ostomy Association of America’s huge ostomy conference. There, I will be leading a college/dorm life talk with another ostomate, I will be hanging around the IDEAS booth, I will be participating in a “rap” session with some teen ostomates, and last but not least, I will be doing the closing ceremonies speech.

I am beyond thrilled to be speaking at this event, let alone to having even been invited! Though I am beyond exhausted from all the traveling I’ve been doing, I’m full of excitement for these next 5 days of spreading a positive attitude while meeting a ton of amazing people.

That being said… my flight’s at 8am and I still haven’t even begun to pack. Better get to it!

Shoutout to the Phoenix Magazine

A whileeee back I was asked to be featured about Uncover Ostomy in the Phoenix magazine, a publication put out by the UOAA.

I never blogged about it here… because I was waiting to get the copy of it to read. I never did get a copy so I figureddddd they still hadn’t printed it.

Well after Michael, a fellow ostomate, posted the Phoenix advertisement on the Facebook page I stopped and thought… wait a second… Did they print it?

Did some google searching and there it was! June 2010 with me on the cover. Cool!

Guess I was featured haha.

Well just wanted to send a shoutout to them and a big thanks for doing that!

Also wantd to give a shoutout to my fellow classmate Leah, who actually wrote the article that was published. She’s awesome!

If you haven’t read it already, or want to read more from them, you should order it :]

<3

[PS: Where's my copy?? haha]

Back in and Ready to Blog! UOAA Ostomy Day!

I can’t believe I haven’t blogged in over a week! I’ve had so many things to talk about!

So normally, I log in to the blog through a bookmarked linked. Last week I ended up having to take my laptop in to get fixed and I thoughttt I had emailed the link to myself so I could access it from another computer. Apparently, I didn’t. I had no way of getting in!

Finally, after giving up myself, I emailed John, from IDEAS, to get me the link. He had been busy with some stuff [like his sister getting married, congrats!] so I didn’t want to bug him. Instead of actually getting me the link, however, he thought THIS would be funny instead. Thanksssssss John.

Unfortunately, while I was “gone” I wasn’t able to blog about the awesome #ostomyday put on by the UOAA with help from C3Life and all the ostomates who helped spread the word. For those who didn’t see it, Ostomy Day was a social media awareness day run by the UOAA where people were asked to change their facebook pictures to the UOAA logo and change their facebook status to support the day. Twitter users were asked to create tweets using the #ostomyday tag in order to spread awareness. As well, C3Life said they would donate $1 to the UOAA for every #ostomyday tweet made. The event seemed to work really well as the UOAA raised over $2,500! Not only that buttt the famous Alyssa Milano tweeted about ostomy day herself to her over 950k followers! How cool is that?

Well done guys!

Anywaysss, I have a bunch of other things I want to blog about, but I just wanted to let you know what was going on!

UOAA Youth Rally

So I know after talking about Canadian Ostomy camp, a lot of the American’s out there were jealous. Why didn’t they get an ostomy camp? They should have fun too!

Well my American friends, there may not be an ostomy camp but there is something just as great!

Every summer the United Ostomy Association of America hosts something they call the “Youth Rally.” It’s like camp, where kids from all over come and spend time away from home meeting other kids with ostomies and having a great time.

Unfortunately, I was unable to go but Rob, the founder of IDEAS, was there to experience it along with Carly and Clinton, the kids who went with him to Mount Everest. It seemed like they all had a great time and I wish I could have gone with them.

Just like with Canada ostomy camp, it’s hard to be able to put an experience like these into words sooo here is the link to the online photo album that the UOAA posted with pictures from the rally, and hopefully the pictures will speak louder than words! Take a look!

 

Keep on Keepin’ On

Just a little while ago, this evening, a friend of mine blackberry messaged me and told me that his mom, who teaches at Conestoga College in Kitchener had a guest speaker in one of her nursing classes who happened mentioned this campaign! How cool is that!?

It looks like people really are getting out and there and spreading the word.

As I look at the fanpage now I notice more and more awesome posts from ostomates showing off their pictures or telling their story. I couldn’t be prouder. Myself, IDEAS, and the UOAA are so happy to see the effects of the campaign thus far.

What I have noticed, however, is that there hasn’t been much participation from non-ostomates. I’m not saying whatsoever that the campaign isn’t for ostomates, but it is ALSO for people without ostomies; people who have never heard of them before.

The campaign was dually meant to show ostomates  that it is ok to be proud of what you have, but also to let others know as well how ok it is! Most people don’t even know what an ostomy is and I wanted to make sure they did!

Pretty much, this is me asking each and everyone one of you to take 10 minutes out of your day, go to the fanpage and invite all of your facebook friends, or send out a mass email to all of those who you know and inform them of what we’re doing. Mention the campaign on twitter. Talk about it at work. Bring it up at a dinner party. Anything!

Let us let everyone ELSE know how ok and AWESOME ostomies are.

Thanks!

 

[PS; anyone know who that guest speaker was? :P ]

Hocus Focus

So I’m pretty excited. The fanpage has over 1000 fans. In like, less than a month. I actually did not expect that and I am so amazed and proud! Doesn’t mean we have to stop though, keep spreading the word! But yes, ditto to the thank you below me from John, UOAA, IDEAS, and OCSC :]

Tonight is one of those nights where I’m only half studying. You know, when the notes are open and you’re looking them over, but really, you’re not absorbing a damn thing. It’s pretty annoying since I have a midterm on Monday and again on Wednesday. At least I have more time. I’m pretty much just checking the UO fanpage over and over again.

It’s just hard to focus when there’s something poking at you from the back of your mind. I’ve got that. There’s something poking at me saying “Jessica, you’re a big idiot and you know it. You knew better, and you still did it. And now you have to face the consequences.”

No, I didn’t commit murder or get pregnant or anything. Just a stupid decision I made in hopes of things turning out for the better and they didn’t.

And now I can’t stop thinking about it to focus.

Anyone have any good focusing tips I can use?

Thank you

IDEAS, the UOAA and the Ostomy Care and Supply Centre want to say a resounding thank you to everyone who has become a fan of Uncover Ostomy on Facebook, sent us a note through the Contact page of UncoverOstomy.com, re-tweeted a message on Twitter, shared content with your Facebook friends and contributed to the content on the Uncover Ostomy Facebook page. If you’ve requested a response from any of us and haven’t heard back yet, we’d like you to know that we’ve received your requests and are working on contacting you shortly. We’d especially like to thank you if you’ve made a donation to IDEAS and/or the UOAA, your contribution is greatly appreciated and will be used for further awareness efforts.

We’d also like to acknowledge the efforts of Jessica for taking the big risk to Uncover Ostomy and lead this much needed social media awareness campaign forward.

When we started planning Uncover Ostomy almost a year ago–man, time flies–we set a lofty goal of driving the ostomy into public discourse. It’s a challenging task to end social stigma and it’s extremely difficult to measure success with this kind of goal. To IDEAS, the UOAA and Ostomy Care and Supply, success means the non-ostomy community’s response to the word “ostomy” changes from “I don’t know what one is” to “that’s a surgery that saves lives and let’s people have an extraordinary quality of life for the future.”

There are all kinds of great examples of this kind of social transformation. Breast cancer went from a stigmatized disease in our communities to an understood condition supported by social empathy, fund raising and awareness activities around the world. And that’s just one example for us to try to emulate.

We’re only just getting started with Uncover Ostomy. We have lots more great content that we’ll be exposing (pardon the pun) and encouraging you to share with your friends and family online. We’d like to invite your continued feedback and participation in this much-needed online discussion.

Thanks again for your ongoing support!

John O’Shaughnessy
IDEAS board president
on behalf of IDEAS, the UOAA and Ostomy Care and Supply Centre

HAPPY WORLD OSTOMY DAY AMERICA [TOMORROW]

I know myself and IDEAS have been spreading the word since WOD in Canada on Oct 3rd. Now it’s time for the UOAA to do the same over there! I have no doubt they will do a great job :]

A new press release is out for every to share to any media contacts they may have. Just read the post below!

Unfortunately, I wont be around to help spread the word in the States. I’ll be locked down in my sorority house.

I have been planning my sorority- Alpha Gamma Delta’s Formal Recruitment for about 2 months straight now. I can’t believe it’s finally here.

In one of my other blogs I sort of explained the whole deal. It’s pretty much 3 days of girls who want to join a sorority coming and meeting with all the actives and some alumni in all the sorority chapters on campus. By the end of it, we end up with a whole new class of girls that become our sisters.

It is also just one step below being a theatrical production. It is intense, organized, planned, decorated, and rehearsed, all just to impress your audience.

I think my chapter’s pretty impressive, if I do say so myself.

The amount of dedication, cooperation, and excitement in preparation for this weekend has been amazing and now all that’s left is to go through it. I’m not worried though. My sisters have it down. I’m so proud. I love them.

That being said, for the next 48 hours I will be living in the sorority house cleaning, decorating, making, practicing, yelling [well hopefully not], laughing and having fun.

…And then studying for 2 midterms I have on Monday and Tuesday. WISH ME LUCK <3

 

Oh, also. Did you know there’s a WORLD SODOMY DAY? Thanks Wikipedia

 

United Ostomy Associations of America Uncover Ostomy For World Ostomy Day October 17, 2009

Here’s a link to the social media release. Everything you need to post multimedia stories on your websites and blogs is found there.

Here’s the text from the social media release from today:

United Ostomy Associations of America Uncover Ostomy For World Ostomy Day

October 16, 2009

World Ostomy Day in the United States is celebrated on October 17, 2009. As part of its awareness activities, the UOAA partnered with 20 year old actor and model, Jessica Grossman, and the Intestinal Disease Education and Awareness Society to Uncover Ostomy through an Internet awareness campaign found at uncoverostomy.com and facebook.com/uncoverostomy.

“World Ostomy Day is a day we recognize the importance of ostomy surgeries as life-quality improvements for people suffering through terrible illnesses,” said Jessica. “I’ve had my ostomy for six years and every day I am thankful for how healthy I feel because of it. World Ostomy Day is the perfect time to show this publicly.”

Many ostomy patients, especially those who have had recent surgery, are reluctant to talk about the changes made to their body. Living in a society that shuns body waste discussion, ostomy patients often feel alone. Quality of life suffers as ostomy patients may be reluctant to participate in activities they previously enjoyed, like swimming or dating, for fear of adverse social reactions. Estimates suggest 750,000 Americans are living with an ostomy.

In the Uncover Ostomy campaign, Jessica exposes what may be beneath the clothes of 1 out of every 500 Americans. Her thought provoking images are already creating an online buzz with almost 1000 fans supporting the Uncover Ostomy Facebook page in the first two weeks of the campaign. A long-time performer despite a lengthy battle with Crohn’s disease, being in front of a camera was natural for Jessica.

“Most of my friends and family are using Facebook and other social networking sites to communicate with one another these days. We decided to give them something really unique to discuss,” Jessica explains. “We took some barely dressed photos with my bag completely visible. When people see these images they’re going to be really surprised. I don’t know if anyone has ever shown the ostomy in this kind of light before. A lot of people think of ostomy as an old person’s problem. It’s not.”

“Most people have no idea about what an ostomy is. Or if they do, their perception is rooted in misconceptions conveyed to them somewhere along the way. By “uncovering” her ostomy, Jess challenges the misconceptions and stigmas—and leads awareness” said Kristin Knipp, incoming UOAA president. “For the non-ostomate, this campaign is about “uncovering” the stigma that goes along with having an ostomy. Sexy or not, the campaign is certainly accomplishing its goal—to create meaningful dialogue about ostomies. And that’s a good thing.”

END UNITED STATES SOCIAL MEDIA RELEASE

FURTHER INFORMATION

About the UOAA: the United Ostomy Associations of America is an association of affiliated, non profit support groups who are committed to improving quality of life for people who have, or will have, an intestinal or urinary diversion. UOAA is dedicated to providing information, advocacy and service to, and for, its affiliated support groups, their members and the intestinal/urinary diversion community at large.

About Jessica Grossman: Jessica is a 20 year old University of Western Ontario media studies student, an actor and a model. Diagnosed with Crohn’s disease at age 9, Jessica made the decision to have her diseased colon removed at age 13 and undergo ileostomy surgery. Professional studio photographs of Jessica, including her ostomy, are available for media reprint on request.

About IDEAS: The Intestinal Disease Education and Awareness Society is a Canadian non-profit organization with chapters in Vancouver, BC and Windsor, ON. The society’s mission is to eliminate intestinal disease and ostomy-related stigma. Their website serves as an educational resource and their programs aim to enhance life-quality for children and youth suffering from Crohn’s disease, Ulcerative Colitis and other digestive illnesses.

About Ostomy: Ostomies are a category of diversionary surgeries. There are three major types: a colostomy is made from the large intestine (colon); an ileostomy is made from the small intestine (ileum); and a urostomy is a diversion of the urinary tract. The most common reasons for ostomy surgery include inflammatory bowel diseases, cancer, birth defects and trauma.

Social media contact information:
John O’Shaughnessy
604.862.4759
john@jdocommunications.com
Twitter: @joshaughnessy